Coming Alive Again

It’s a crazy mixed up world we live in.  All you have to do is turn on the news to realize that.  Then there’s our own personal challenges added to the mix.  And…well…that can make us feel overwhelmed.  But there’s still beauty to be found in the middle of the broken.  My camera helps me seek and find it.  I’d like to share another poem that I wrote, several years ago, that was just published.  Go figure…just published after all these years!  Another surprise for me.  I thought I better hurry up and post this since spring is going to shift into summer soon…

Coming Alive Again

1

In spring there’s a freshness

and a beauty unfolds,

all that was sleeping

awakens for us to behold.

daisies

There’s a sigh of relief

that winter has ended,

even the birds are aware

of all that is splendid.

woody

Woodland animals awaken,

peeking out their faces

slowly at the beginning,

from their resting places.

deer light x

Everything comes alive

like a rebirth,

a sense of anticipation

fills the whole earth.

pair of ducks 2

Dormant flowers rise up

to feel the sun’s warmth,

brown grass turns green

and color comes forth.

colors of spring

Gray skies become blue,

clouds look like marshmallows,

a tapestry on the ground

that is no longer fallow.

clouds

A colorful picture

and a marvelous sight —

when the world around us

is no longer black and white.

tulips 2

Written by:  Nancy Janiga

All photos taken by: ©Nancy Janiga

Holding On

crabapple blossoms wdp

I wrote the following words on January 11, 2015 in my piece titled, Our Spring is coming

“We are looking forward to the end of this storm, this winter that we are in.  We are looking forward to seeing all the signs of spring and new life…The crocus’ poking up from beneath the snow, the sun shining brighter, the patches of snow disappearing and the grass greening.

We are looking forward to spring with the hope of being home where we can live out what the medical staff is calling our new normal.”

As spring and the promise of new life arrived, we received the results of Bob’s spinal fluid and bone marrow biopsies, CANCER FREE!  Two of the most beautiful words that we’ve ever heard!

cancer free wdp

Through the sovereignty of God and our son, Scott, agreeing to God’s plan through his bone marrow donation, Bob received a second chance at life; a rebirth so to speak.

After 8 months in this medical community, we thought by now we could make plans to return home but Bob is fighting an intestinal infection.  The transplant knocked down his immune system so it will be an uphill climb for a year from the date of his transplant.  The complete recovery process, at times, is grueling.  What would be a minor illness for you or me, becomes serious for Bob.

What we have learned through this experience, right from the beginning, is that we never know what tomorrow may bring so we must hold tight to the ONE who holds tomorrow in His hands.

In the middle of our own medical odyssey, my dad had a heart attack and a stroke and is recovering nearby.

We’re a little battle fatigued but remain hopeful.

Our hope lies in the one who holds tomorrow in His hands and those hands are holding both of the special men in my life…my husband and my father.

crabapple in vase wdp

journal wdp

I wrote a poem years ago that I completely forgot about until I received a letter in the mail recently.  The letter came from a mission publication stating that they were going to publish my poem.  It was an unexpected surprise.  A gift of God’s timing.  Here are those words:

Rejoice and Be Glad

Springtime brings new energy
And all nature is refreshed;
The veil of winter lifted,
Feeling by the sun, to be caressed.

The earth begins to come alive
As presenting a new song
And all that is within us
Begins to sing along.

God paints the earth with greenery
And colors every flower,
Showcasing birds against blue skies
With a demonstration of His power.

Somewhere deep within the heart
There’s a joy we can’t contain;
Surrounded by spring’s newness,
Hope and happiness remain.

Skipping to the beat of spring
Floods the soul with peace.
After the wilderness of winter,
God brings us sweet relief.

God is bringing us sweet relief slowly from our winter wilderness.  What was buried beneath the winter of our souls, is emerging stronger, resilient, joyful and thankful.

Many of you have been part of this second chance at life for Bob — especially through your prayers — and for that we are thankful.  We are thankful to God and to all of you.  And now we wait in hope for God to clear up Bob’s infection and make his recovery complete.

Blessings,

Nancy

In Our Trouble

honey 6xxx

“In this world you will have trouble. But take heart! I have overcome the world.”  John 16:33

Trouble.  Jesus promises us trouble.  He didn’t say you might have trouble or there is a possibility of having trouble.  He tells us we will have trouble.

His words are recorded at the end of chapter 16 in the gospel of John.  Right smack dab at the end of His teaching to the disciples–which was meant to prepare them for His impending death and resurrection–He tells them what to expect and that it wasn’t going to be easy or comfortable.

He taught them but they really didn’t get it.  He also promised them a gift…the gift of the Holy Spirit.  When they received that gift after His resurrection, they understood and they received power to live as overcomers.

Jesus overcame death through the resurrection.  And His followers will too.  “But take heart!  I have overcome the world.”

But what does all this mean for me today in the here and now?

In my present situation, it means that when the doctor tells me that I will be my husband’s nurse–post bone marrow transplant–and there will be daily infusions to give him in his chest catheter, flushing the 3 lines with saline and heparin, taking his blood pressure, temperature and watching him closely for signs of disease…I tremble!  This is trouble!

And I cry out to God and I overcome my fears, not by bailing out, but by sticking in there with the help of the Holy Spirit.

When I am at my weakest, when I feel helpless and I look at Bob who is even more helpless, this is trouble!

And I cry out to God and somehow I’m uplifted and given strength that I could never muster up myself.

When I say, “I’m not capable for this task.  I’m not a nurse and if I wanted to be a nurse I would have become a nurse,”  and when I fear doing new things and organizing and administering 13 medications, preparing food that Bob can tolerate, keeping the house fit and sanitized for a transplant patient, and transporting him to hospital visits, I miraculously don’t cave under the weight of it.  Humanly, I think I will.  But I don’t

God knows ‘I can’t’ but through Him I can do all things.  Just like Philippians 4:13 promises.

And in the midst of the trouble there’s even moments of repose, quiet and deep peace.

It doesn’t always come easy but it comes.

God is good in the midst of trouble and in our weakness He is strong.  And that’s how we overcome.

Blessings,

Nancy

(The above photo was taken in our home away from home near the hospital where my husband is being treated.  I have been photographing indoor scenes since I don’t get out in nature much.  My camera is my companion on this journey.  I thought I’d have to give up my photography but how could I?  It’s a gift from God, and all that I photograph are reminders of the small delights and simple pleasures that I have to be thankful for).

New Year; New Hope

bob on beach(I snapped this photo of Bob at the end of January 2015 on the gulf coast of Florida).

Someday, once again, Bob will enjoy the simple pleasures of God’s creation that he loved so much.  I cherish the above photo because to me it’s filled with light and hope.

My one word for 2016 is HOPE.

hope

After the last 5 difficult months and many more difficult months ahead, 2016 is still filled with so much light and hope

Bob had his bone marrow transplant a couple of weeks ago on January 13, 2016.  As many of you already know our oldest son, Scott, donated his bone marrow to save his dad’s life.  What a gift!

Bob’s discharge from the hospital was on January 27.  Just 2 weeks after the transplant.  The doctors and medical staff stand amazed that the engraftment of the new cells began about 4 or 5 days sooner than anticipated and that allowed his discharge to happen sooner also.

What has been impossible for us to do or the medical staff to do, continues to happen.  We know and hold on to the fact that nothing is impossible with God.

God is shining.  God is receiving the glory through our journey and even though we still have a hard road ahead we know we are not alone and His mercy will sustain us.

Bob is weak.  His immune system is compromised and won’t get better for many months.  The immunosuppressants (or anti-rejection meds) also lower his ability to fight infections so he must be protected like a new born babe.

In many respects, he is like a newborn, with new life and new hope.

One of our favorite verses since Bob’s diagnosis with the chronic form of Leukemia in 2014 and on into 2015 when it transitioned into the more serious acute type of leukemia has been Lamentations 3: 21-23:

hope

Because the Lord’s steadfast love never ceases, we have hope for 2016 and beyond.

Blessings,

Nancy

(To all of you who are praying for my Bob and for our entire family…THANK YOU!  That’s what is moving the hand of God and helping us through this difficult time.  Although we know God knows all things, sees all things, and is present with us, he wants us to pray and uses prayer in a mysterious way to carry out His plan.  We are grateful for the many prayers going up for us).

Our spring is coming

snw 3 (2) copy

They are telling us that we’ll be here until spring.  Who would have thought that we’d be here, in this place, longer than we would be home in the time span of a  year?  It could end up being a total of 8 or 9 months.

They tell us we’ll be living a “new normal.”

There isn’t anything normal about this.  Cancer isn’t normal.  We weren’t created for it.  God has given us life.  So we fight for that precious gift daily.

Jesus wept at Lazarus’ grave.  He weeps with us too.  Our sorrow becomes His sorrow.

The truth is this world is fallen.  We were created for life~for right here forever~but it was stolen away from us.  Now we live with glimpses of paradise but this world isn’t paradise.

Part of the fall brought with it sickness and disease.  It has affected Bob.  He is fighting for his life and until the Lord tells him to quit fighting here~and welcomes him into his eternal home~he fights on and I fight alongside of him, because life is a gift!

God has a plan in all of this and it’s unfolding.

Summer, Fall, Winter…  The seasons changed.  And so have we.

It has brought us back to a vulnerable childlike place.  But isn’t that exactly where God wants us?

We don’t experience His presence unless we are humble, vulnerable, like little children crying out to a parent.  And what good parent ignores a child?  And what good papa doesn’t quiet the cries of his children?  Abba, our papa cares.  He’s a good Father.

Bob and I have a question that we ask each other often.  That question is…  “Is it time to lament?”

You see one night when things looked bleak, when we didn’t think we could go another step and we were tired of being strong, I said, “Christians have lost the art of lamenting.  We need to lament.  It’s not an option.  It’s a necessity.”

So lament we did.  Lying in bed we cried, cried out to God, not with fancy words or prayers.  No, just with the truth of how we were feeling.  And you know what?  We fell asleep in the arms of God.  And the next day brought peace and answered prayer.

We are looking forward to the end of this storm, this winter that we are in.  We are looking forward to seeing all the signs of spring and new life…The crocus’ poking up from beneath the snow, the sun shining brighter, the patches of snow disappearing and the grass greening.

We are looking forward to spring with the hope of being home where we can live out what the medical staff is calling our “new normal.”

Blessings,

Nancy

(Transplant day is Wednesday, January 13, 2016.  Scott’s bone marrow will be harvested that morning and Bob will receive the infusion that afternoon.  Thank you, our friends, who have been so faithful in prayer.  We love and appreciate each one of you.)

An Unexpected Gift

angel xx - Copy

This place so far from home, the one we live in close to the hospital some may call isolation but we call it holy ground.

It’s a new normal.  A place stripped of most of our possessions but here in the quiet we have found God to be more than enough.

His presence is often experienced the most in our deep nights of the soul.

We are experiencing Him in new and profound ways.

That’s a gift.

Cancer.  My husband’s cancer has caused us to go deeper with God, to experience His peace that passes all understanding more frequently.  Especially in times of fear when we feel lost and alone and cry out to Him.  It may not happen immediately but He always lets us know that He hasn’t abandoned us.

We will never be the same.  You can’t go through something like this and ever come out on the other side of it the same as you entered into it.

Often God’s mercies are wrapped in unexpected ways.

Look at Jesus.  Away in a manger no crib for a bed…

Who would have thought God would wrap His most precious gift of love, grace and mercy in swaddling cloths?

Who would have thought God Himself would come to earth in such a lowly, humble way?

Truth is His most precious gifts often come wrapped that way.  In ways that we would never expect.  His gifts are perfect and right on time.

We prayed for 4 months that a bone marrow donor would be found for my husband.

Many have prayed.  Perhaps you prayed too.

The news came that a donor could not be found through the registry.

More chemo.  More waiting.  More praying. More hoping.

Then the miracle came.

Our oldest son, Scott, tested as over half a match.

Not perfect but good enough.

It’s good enough for a haploidentical bone marrow transplant.

These types of transplants have been done successfully at the University Research Hospital where the transplant will be done.  All transplants come with benefits and risks.  It’s not easy by any means but we trust God with the outcome.

On January 6 my husband will enter the hospital.  His immune system will be suppressed through more chemotherapy and radiation.

On Januray 13, Scott’s bone marrow will be harvested and given to Bob through an IV.

My husband, Bob, will receive the gift of life through the son that he gave life to.  The son we gave birth to is giving his father a second chance at life.

Who would have thought that the answer; the gift would come through our son?

We celebrate the most precious gift ever given in Jesus this month, the one who has given us life eternal.

And we receive with grateful hearts His precious gift of mercy wrapped in the most unexpected way through our son, Scott and we thank our son for his most special offering.  Certainly it’s the best gift that he’s ever given his dad for Christmas.

We are going to have a Merry Christmas knowing that our God knows what He is doing and although a perfect donor match could not be found He is going to give Bob a perfect transplant.

Merry Christmas!

Nancy ❤

( The photo was taken of an angel adorning our beautiful European Cyprus Tree.  Both the tree and ornaments were sent to us by some dear friends)

Our Hearts Are Being Refreshed

macarons xxx

It’s early.  I woke before dawn and watched daylight break through the darkness.  I glance at the cup a dear friend sent to me and read the prayer printed on it.

“May God grant you courage, and through His grace provide the peace that lies in knowing He’s always at your side.”

More than ever I need to know this.  We, my husband and I, need to know this.

My friend sent two different but special mugs.  One for me and one for Bob.

The other mug says:

FAITH, is being sure of what we hope for.  Hebrews 11:1

Our hope is in the Lord.  Our hope is knowing that He will give us strength and courage to walk through this valley.  And as the prayer on the cup says…and through His grace provide the peace that lies in knowing He’s always at our side.

We believe.

Bob went to sleep with those words on his lips last night:  “I believe.”

There have been bursts of glory knowing God is near as His overwhelming presence carries us.  It’s actually more than knowing it.  We’re experiencing it.

We arrived here in this place, 170 miles and three hours away from our home, at the end of August.

It is the beginning of December now and we are still here in our home away from home.  In this apartment 2 miles away from the hospital where Bob is being treated for Acute Lymphoblastic Leukemia, we are living our new normal.

Bob spent 34 days in the hospital during his induction treatment.  Now he is having his treatments out patient as we wait for news about a stem cell/bone marrow transplant.

A donor match hasn’t been found.

We’re running against time and soon the transplant team will be making a decision to do either an umbilical cord blood transplant or use a 1/2 match from a family member in an attempt to save Bob’s life.

Chemotherapy alone will not keep the aggressive fast growing cancer in remission.

Without the quick decisions and chemotherapy program that Bob’s doctors designed for him, he may not be here today.

We were whisked away within days to begin his treatment.  They didn’t waste any time.

Bob is in remission receiving chemo to keep it there until a transplant can be done.

rose x

A couple of weeks ago, we found flowers on the doorstep of the apartment where we’re living.  A gift from friends back home.  I clipped and arranged them, put them in a vase and they have been giving us many days of joy.

As we look around at the gifts and cards that so many friends have sent we’re overwhelmed with gratitude.

My sister and her husband have been coming at least once a week.  Dave stays with Bob and Judy takes me out for a while.  My other sister, Diane and her husband Andy visit and Diane meets Judy and I for lunch often.

The doctors and nurses ask me, “What are you doing to take care of yourself?”  It’s easy to forget that if I don’t take care of myself, I won’t be able to care for Bob.

My sisters have been lifesavers for me, rescuers who won’t let me slip into depression or neglect my emotional or mental health.

Our sons; our daughter-in-law ~ ~ they’re like life-saving medicine to our hearts.

My brothers, my parents, many friends ~ their cards, their calls, their texts, their visits, their prayers are bathing us with hope and courage. We have an army of prayer warriors standing with us in prayer.

We arrived here in the summer…

queens anne lace 4 x

flwrs 3xxx

Saw the beauty of autumn come…

dandy 2

1(1)whole apple 2

then slowly slip away…

tree leave e

droplets

and stood amazed at the winter wonderland of our first snowfall…

snowy berriesx

Through the seasons of change and waiting, we are refreshed by the love and prayers of so many people.

In the fights of life, people can be conduits of great joy and deep refreshment.  Margaret Feinberg

There are many friends and family members fighting this fight with us.

Your love has given me great joy and encouragement, because you, brother, have refreshed the hearts of the Lord’s people.  Philemon 1:7

Blessings,

Nancy ❤

(All photos were taken by me in or near our home away from home.  I believe God has given us the ability to find and create beauty in the middle of this messy often painful world.  I hang tight to Him and to His promises and will continue my search for beauty through my lens)